|
|
 | All Times Eastern Time - US |
| |
|
|
 | If you would like to be in a safe place to talk about what you are going through, or if you would like to encourage others, please check out the Virtual Support Groups HERE. Together, we are strong! Current schedule: |
| |
|
|
 | How would you answer this question during September, Blood Cancer Awareness Month? Here are a few answers via Facebook and Instagram: - A bone marrow transplant and the isolation and loss of control over choices made to your body ❤️
- Hearing that you need a stranger’s kindness to survive
- What your child has to go through and the unknown that awaits you.
If you'd like to share your response, please email baker@aamds.org |
|
|
|
|
Have you been wondering how to get involved with PNH research but did not know where to start? Here’s your chance! Check out the Global PNH Patient Registry at pnh.iamrare.org |
|
|
|
| | |  | October 17: Meet you at the Park! The 15th March for Marrow - PNH Walk will be in Verona Park, NJ! Be there to support education and hope for patients and families. Find details and register today! Sign up Here! |
| |
|
|
 | Join us virtually for a 5K Run/Walk! Register your team today to support patients with answers, support, and hope during this fun event! Find all the details HERE! |
| |
|
|
|
|
| | | |  | Would you help? Spread the word about MDS disease and impact with us, and we will share on social media and more. Record a short zoom, write your story, or talk with us and we'll do the rest! To find out more, email help@aamds.org before October 5! |
|
|
|
| |  | Recruiting: SELECT-MDS-1, A Randomized, Double-blind, Placebo-controlled Study of Tamibarotene Plus Azacitidine Versus Placebo Plus Azacitidine in Newly Diagnosed, RARA-positive Adult Patients With Higher-risk Myelodysplastic Syndrome |
| |
|
| AAMDSIF does not recommend, endorse, or make any representation about the efficacy, appropriateness or suitability of any clinical trial listed on our website. Pharmaceutical company-sponsored content is highlighted only to give additional information about the trial. All trials are listed on https://clinicaltrials.gov/. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a clinical trial, and never disregard professional medical advice or delay in seeking it because of something you have read on our website. |
|
|
| | | |  | In Chapter 2 the different treatments available for MDS are explored. Learn how risk status score informs prognosis and treatment decisions. Risk score helps estimate how quickly MDS could grow and progress to AML. It also determines which treatments are right for each person. Watch HERE. |
| |
|
| | A final thought: All of our conferences, webinars, educational opportunities, and patient support are made possible from gifts by people like you, friend. Your donation will help us reach more patients and families. |
| |
|
| | | |
|
|
|
|
|
Aplastic Anemia and MDS International Foundation
4330 East West Highway Ste 230 | Bethesda, Maryland 20814
3012797202 | help@aamds.org |
| |
|
|
|
