The Aplastic Anemia and MDS International Foundation (AAMDSIF) is committed to “Taking the Journey Together" by providing resources and activities that raise awareness about aplastic anemia, MDS, and PNH.
Join us throughout the week - March 4-8!
Kick off awareness week on Monday, March 4th by changing your social media profile photo to the "Taking the Journey Together" image. Share the image with family and friends for their social media profiles. Download the image by right-clicking on the image on a desktop or holding and copying on your mobile device.
Sign up to attend a Patient and Family Conference. Meet other patients in person and learn the latest about your diagnosis.
Register for webinars! These one-hour programs provide access to medical experts.
Listen to the latest in treatments and research from our Podcast for Patients series. Subscribe on your favorite podcast platform.
Share words of inspiration to help another patient and send us a Hope Note to include in the patient information packets. Download the Hope Note and send it back to us by email (help@aamds.org) or mail.
Pay it forward and help the next patient diagnosed. Order a free packet of information about our programs that your doctor can give to patients. We can send it directly to your doctor or send to you for your doctor.
Join the Global PNH Patient Registry, a powerful opportunity for individuals with PNH and their family members to contribute directly to research that will enhance the understanding of PNH.
We encourage this community to share resources and stories with friends, family, and the public so they can learn about these complex and lifelong invisible diseases.
Let's Take the Journey Together to make aplastic anemia, MDS, and PNH VISIBLE!
Aplastic Anemia and MDS International Foundation AAMDS Question? Email us at help@aamds.org or call (301) 279-7202
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Aplastic Anemia and MDS International Foundation AAMDS is a 501(c)(3) organization. All gifts are tax deductible to the full extent of the law.
