March for Marrow Walk for PNH
New York City 2019
For 35 years, the Aplastic Anemia and MDS International Foundation has been working to provide education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. Join us for a morning of fun and awareness at our annual March for Marrow Walk for PNH in New York City.
The Walk for PNH is the nation's largest event to raise awareness and funds for PNH education and research. This inspiring event calls on participants of all ages and abilities to join in the fight against PNH.
Together we can put an end to PNH!
Make a difference, help a patient. Don't delay!
You can register for the walk online through Friday 9/13/19, or on site on Sunday 9/15/19. Our goal is to raise $30,000 for PNH.
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
Sunday, September 15, 2019 | 10:00am to 1:30pm
Riverside Park | 79th Street Entrance
New York City, NY 10115
Funds raised by the Walk for PNH will be used to search for a cure for PNH and support the patients who are living with it.
What to Expect
Welcome to the annual Walk for PNH! The event is the biggest fundraiser dedicated to raising money to help people with paroxysmal nocturnal hemoglobinuria (PNH) by funding critical research and patient support programs.
While we promise you a fun day with friends old and new from all over the country, none of us will forget what brings us together each year. Besides raising funds, the Walk is also a great opportunity to gather together as a community to re-commit ourselves to work together to fight PNH.
Your walk registration fee includes a t-shirt and lunch!
Refer to the FAQs below for more information.
10:00AM Registration and Check-In
11:00AM Welcome Ceremony and Walk
12:00PM Lunch and Meet & Greet with Walkers
1:30PM Farewell Until 2019
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 35 years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 14 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.
This event would not be successful without the volunteers who serve on these committees.
Thank you to our committee for all of their hard work!
The success of this event depends on our volunteers!
We need many volunteers to make the 2019 Walk for PNH a fun and successful event.
There are many volunteer spots available including set-up, registration and check-in, walk route monitoring, and site clean-up.
Want to help? Send an email to Marlena Connor and she will be in touch soon.
Our thanks to these supporters who help make this walk possible and ultimately make a difference in patients' lives.
Please select the appropriate registration below. Then create an account or login with Facebook and complete the short registration form. Be sure to select the correct t-shirt size for yourself.
Registration options include:
You will have the opportunity to join a team during the registration process by selecting a team from the drop-down menu; alternatively, you can create your own team.
After you've completed and paid for your registration, you will receive an email receipt.