March for Marrow Walk for PNH
In memory of Missy Workman
For 35 years, the Aplastic Anemia and MDS International Foundation has been working to provide education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
Join us for a morning of fun and awareness at our annual March for Marrow Walk for PNH in Barberton, Ohio.
The Walk for PNH offers an opportunity to raise awareness and funds for PNH education and research.
Together we can put an end to PNH!
Make a difference, help a patient. Don't delay!
You can register for the walk online through Friday 9/13/19, or on site on Saturday 9/14/19. Our goal is to raise $3,000 for PNH.
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
Saturday, September 14, 2019 | 1:00 pm to 4:00 pm
Lake Anna Park
615 W Park Ave | Barberton, OH 44203
Funds raised by the Walk for PNH will be used to search for a cure for PNH and support the patients who are living with it.
What to Expect
Welcome to the annual Walk for PNH! The event is a fundraiser dedicated to raising money to help people with paroxysmal nocturnal hemoglobinuria (PNH) by funding critical research and patient support programs.
We promise you a fun day with friends. Besides raising funds, the Walk is also a great opportunity to gather together as a community to re-commit ourselves to work together to fight PNH and remember Missy.
Your walk registration fee includes a t-shirt!
Refer to the FAQs below for more information.
1:00 PM Registration and Check-In
4:00 PM Farewell Until 2020
More details to come!
2019 WALK HERO: MISSY WORKMAN
Support the education and research for PNH and keep Missy's legacy alive. She was a die hard for the PNH Research Foundation.
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 35 years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 13 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.
This event would not be successful without our dedicated organizer.
Samantha Wade is the Walk for PNH Ohio organizer. Samantha was a good friend of Missy's and organizes this event in her memory.
Thank you to Samantha for all of her hard work!
The success of this event depends on our volunteers!
We need many volunteers to make the 2019 Walk for PNH a fun and successful event.
There are many volunteer spots available including set-up, registration and check-in, and site clean-up.
Want to help? Send an email to Samantha Wade and she will be in touch soon.
Our thanks to these supporters who help make this walk possible and ultimately make a difference in patients' lives.
Please select the appropriate registration below. Then create an account or login with Facebook and complete the short registration form. Be sure to select the correct t-shirt size for yourself.
To return home click here
Registration options include:
You will have the opportunity to join a team during the registration process by selecting a team from the drop-down menu; alternatively, you can create your own team.
After you've completed and paid for your registration, you will receive an email receipt.