Having trouble viewing this email? View it in your web browser

In light of the precautions all states are taking to prevent the spread of COVID-19, we are taking the National Patient & Family Conference to a virtual format!
Please register today! The experts below will help you understand your bone marrow failure disease. You will be able to submit your questions for the speaker for every session!

The Conference will be completely online. Your confirmation email will provide information on how to access the conference. Please be sure to follow the instructions when you register so that you can access the sessions, chat rooms, quizzes, and partner booths!

Registration is now open, and thanks to generous sponsors and donors, it is free for patients, family members, and caregivers. Don't miss out! Find more details here: 


Friday, July 17, 2020 
12:00pm:  Welcome & Opening Remarks
12:15pm:  Concurrent Sessions :

  • Blood Transfusions, Iron Overload and Treatment Options
  • Should I Enroll in a Clinical Trial? Stories from Participants
  • Pediatric Bone Marrow Failure Diseases:  A Special Session for Kids

1:30pm:  Concurrent Sessions:

  • Managing Fatigue and Other Side Effects
  • Role of Complementary and Alternative Medicine

3:15pm:  Closing Plenary Session
4:00pm:  Patient Support Group - Aplastic Anemia

Saturday, July 18, 2020 
12:00pm:  Welcome & Keynote Speaker
1:15pm:  Concurrent Sessions :

  • Aplastic Anemia:  A Patient-Centered Approach to Diagnosis and Treatment
  • PNH:  A Patient-Centered Approach to Diagnosis and Treatment
  • Living with Low-Risk MDS:  What Are Your Options?

2:30pm:  Concurrent Sessions:

  • Aplastic Anemia and Overlapping Diseases:  Understanding the Risks and Treatment Options
  • The Changing Landscape for PNH Patients:  Selecting the Right Treatment Option
  • Moderate and High-Risk MDS:  A Patient-Centered Approach to Diagnosis and Treatment

3:45pm:  Closing Plenary Session
5:00 pm:  Patient Support Group - MDS

Sunday, July 19, 2020 
12:00pm:  Concurrent Sessions:

  • The Risks and Benefits of Bone Marrow Transplant:  BMT and Beyond
  • Financing Your Rare Disease:  Navigating Insurance and Patient Assistance Programs

1:00pm:  Concurrent Sessions:

  • Caregivers:  Taking Care of Yourself While Caring for Others
  • How Long Do I Have to Live? Prognosis for Bone Marrow Failure Diseases

2:30pm:  Closing Plenary Session & AAMDSIF Leadership Awards
3:30pm:  Patient Support Group - PNH

Save the Date!  The National Virtual March for Marrow is July 18th. More information HERE.


Share This

Follow Us

Aplastic Anemia and MDS International Foundation
4330 East West Highway Ste 230 | Bethesda, Maryland 20814
3012797202 | help@aamds.org