March for Marrow 5K Run & Walk
Los Angeles 2020
For 35 years, the Aplastic Anemia and MDS International Foundation has been working to provide education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
2020 is the 11th Anniversary of the March for Marrow Los Angeles - join us to celebrate and to help us find a cure for bone marrow failure disease. Our 5K has the distinction of taking place along the beautiful stretch of shoreline that is part of the Long Beach Shoreline Marina. With the iconic Queen Mary in the background, the course is scenic, flat, and regardless of weather, ideal for beating one's personal best.
Help us raise awareness for bone marrow failure disease!
Make a difference, help a patient. Don't delay!
You can register online through Thursday 4/23/20 for both the 5K and walk, or on-site on Saturday 4/25/20. Our goal is to have 500 people running and walking for bone marrow failure diseases.
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
Saturday, April 25, 2020 | 6:30am to 11:30am
Shoreline Village Long Beach |
429 Shoreline Village Drive in front of Wheel Fun Rentals
See the FAQs (link below) under PARKING for more information
Funds raised by the March for Marrow 5K Run and Walk will be used to search for a cure for bone marrow failure disease and support the patients who are living with it.
Silent Auction: A key part of our Saturday’s festivities has always been our Silent Auction. Some of our exceptional items to date are:
Signed sports memorabilia
Tickets to Disneyland
Round trip tickets from Southwest Airlines
What to Expect
Festivities include a 5K run and 1- or 2-mile walk, patient and family memory board, Moment of Remembrance, silent auction, light refreshments, inspirational speakers, a day of connecting with fellow patients and families affected by a bone marrow failure disease, and raising funds to support AAMDSIF's patient programs and services. Our honorary chair Connie Britton will be there to help us celebrate 11 years of raising awareness and we hope you will too!
Details coming soon.
"This run is perfect for new and seasoned runners. It is scenic, flat, and fast. When I can, I run it in memory of my brother, Garrett."
Mia Hamm, US Women's National Soccer Team, 1987-2004
6:30 AM 5K Run Registration
7:30 AM Celebrity Introduction
8:00 AM Welcome/5K Start & Auction Opens
8:15 AM Walk Registration
8:50 AM 5K Awards/Photos/Breakfast
9:00 AM Team Cheers and Team Photos
9:30 AM Group Photo/Moment of Remembrance
9:45 AM Walk Start
11:15 AM Auction Closes
12:00 PM Farewell
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 30+ years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 13 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.
This event would not be successful without the volunteers who serve on these committees.
Sponsorships & Business Engagement
Silent Auction & In-kind Outreach
Silent Auction & In-kind Outreach
5K Marketing & Social Media
Experience & Logistics
Community Outreach & Collateral
Kathy Madden & Margaret Dascalu, Volunteer Coordination
Web Page & Fundraising Support
The success of this event depends on our volunteers!
Please consider volunteering at the March for Marrow LA 5K Run and Walk. There is a volunteer role for everyone and we would love for you to get involved! Email Kathy to sign up!
PLUS - The more volunteers we have the better our chances of receiving tickets to Disney from the Points of Light Foundation! Let them know you're volunteering here.
2020 WALK CHAMPION: Ruth Cuadra
In 1996, when Ruth got a phone call from her doctor about her low blood counts, she thought she was merely anemic. “I’ll take an iron supplement,” she thought. The problem turned out to be much more serious, with a diagnosis of aplastic anemia (AA), a rare disease in which the bone marrow can’t make sufficient blood cells. That explained why she’d been bruising so easily and feeling so tired. Her red blood cell count, white blood cell count, and platelet count were all way below normal.
When treatment for AA produced little improvement and Ruth’s bone marrow exams revealed abnormal chromosomes in 1998, her diagnosis was changed to an even more life-threatening disease: myelodysplastic syndrome (MDS). There were no drug treatments for MDS at the time.
But there was one hope for a cure: a bone marrow transplant. Be the Match found someone in the national bone marrow registry who matched Ruth, and after 44 days in the hospital and a year of gradual recovery, Ruth was cured.
Ruth celebrated the 21st anniversary of her bone marrow transplant in 2019. As a survivor of AA and MDS, she has devoted herself to raising awareness about bone marrow failure, supporting patients, and helping the Aplastic Anemia & MDS International Foundation, including co-organizing all 11 (and counting) March for Marrow events in Los Angeles.
REMEMBER, HONOR & CELEBRATE BOARD
Ever since our founding, patients and family members have created incredible posters celebrating their journey with bone marrow failure diseases. Los Angeles volunteer, Candy Stoutenborough, formalized this process with the creation of our Remember, Honor & Celebrate Board. She invested vast amounts of time collecting stickers, jewels, pithy sayings and colored pens and paper for people to create their own posters and 4Imprint donated a portable board. We invite you to bring your poster, letter and favorite photos to decorate the Board on April 25th – or come prepared to make your own on site. We still have a lot of supplies thanks to Candy’s thoughtfulness and dedication and 4Imprint's generosity!
Our thanks to these supporters who help make this walk and run possible and ultimately make a difference in patients' lives.
Please select the appropriate registration below. Then create an account or login with Facebook and complete the short registration form. Be sure to select the correct t-shirt size for yourself.
All registrants must have a valid email address.
You will have the opportunity to join a team during the registration process by selecting a team from the drop-down menu; alternatively, you can create your own team.
After you've completed and paid for your registration, you will receive an email receipt. Please check your spam filter if you do not receive the email within five minutes.