March for Marrow Walk for PNH
PNH Educational Breakfast
New York City 2018
For 35 years, the Aplastic Anemia and MDS International Foundation has been working to provide education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. Join us for a morning of fun and awareness at our annual March for Marrow Walk for PNH in New York City.
Before the walk, please join us for our annual PNH Breakfast with the Experts at the Beacon Hotel for an informal presentation and question and answer session with Dr. David Araten.
The Walk for PNH is the nation's largest event to raise awareness and funds for PNH education and research. This inspiring event calls on participants of all ages and abilities to join in the fight against PNH.
Together we can put an end to PNH!
Make a difference, help a patient. Don't delay!
You can register for the walk online through Friday 9/14/18, or on site on Sunday 9/16/18. Our goal is to raise $30,000 for PNH.
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
Sunday, September 16, 2018 | 10:00am to 1:30pm
Riverside Park | 79th Street Entrance
New York City, NY 10115
Funds raised by the Walk for PNH will be used to search for a cure for PNH and support the patients who are living with it.
What to Expect
Welcome to the annual Walk for PNH! The event is the biggest fundraiser dedicated to raising money to help people with paroxysmal nocturnal hemoglobinuria (PNH) by funding critical research and patient support programs.
While we promise you a fun day with friends old and new from all over the country, none of us will forget what brings us together each year. Besides raising funds, the Walk is also a great opportunity to gather together as a community to re-commit ourselves to work together to fight PNH.
Your walk registration fee includes a t-shirt and lunch!
Refer to the FAQs below for more information.
10:00AM Registration and Check-In
11:00AM Welcome Ceremony and Walk
12:00PM Lunch and Meet & Greet with Walkers
1:30PM Farewell Until 2019
BREAKFAST WITH THE EXPERTS
Join us at the Beacon Hotel for our annual PNH Breakfast with patients, families, and friends before the Walk for PNH.
Date: Sunday, September 16th
Time: 7:30 am - 9:30 am
Location: The Beacon Hotel, Broadway/Amsterdam Room
2130 Broadway, New York, NY 10023
Agenda: Join us for a special breakfast with Dr. David Araten from New York University who will be giving an informal presentation. Dr. Araten will also have one of his patients discuss their journey with PNH. There will be plenty of time for questions and answers with Dr. Araten.
AAMDSIF has a negotiated rate of $315/night (taxes not included) at the Beacon Hotel. To make your reservation, please call (212) 787-1100 x2 and mention AAMDSIF PNH Group. This rate is valid until Wednesday, August 15th.
Check in: 3:00 PM
Check out: 12:00 PM
All rooms include complimentary coffee and WiFi.
If you have any questions about the breakfast, please contact Angie Onofre at email@example.com or (301) 279-7202 x112.
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 35 years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 13 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.
This event would not be successful without the volunteers who serve on these committees.
Thank you to our committee for all of their hard work!
The success of this event depends on our volunteers!
We need many volunteers to make the 2018 Walk for PNH a fun and successful event.
There are many volunteer spots available including set-up, registration and check-in, walk route monitoring, and site clean-up.
Want to help? Send an email to Marlena Connor and she will be in touch soon.
Our thanks to these supporters who help make this walk possible and ultimately make a difference in patients' lives.
Don't forget to join us for the PNH Breakfast with the Experts. Dr. David Araten from New York University will give an informal presentation and one of his patients will share details about their journey.
Please select the appropriate registration below. Then create an account or login with Facebook and complete the short registration form. Be sure to select the correct t-shirt size for yourself. Also, please indicate if you will be attending our PNH Breakfast with the Experts at 7:30am before the Walk.
If you cannot attend the walk but would like to attend the PNH Breakfast with the Experts please select that registration option.
To return home click here
Registration options include:
You will have the opportunity to join a team during the registration process by selecting a team from the drop-down menu; alternatively, you can create your own team.
After you've completed and paid for your registration, you will receive an email receipt.