Loading....
March for Marrow 5K Run & Walk
Los Angeles 2019
For 35 years, the Aplastic Anemia and MDS International Foundation has been working to provide education, support, and hope for patients living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
2019 is the 10th Anniversary of the March for Marrow Los Angeles - join us to celebrate our first decade and to help us find a cure for bone marrow failure disease. Our 5K has the distinction of taking place along the beautiful stretch of shoreline that is part of the Long Beach Shoreline Marina. With the iconic Queen Mary in the background, the course is scenic, flat, and regardless of weather, ideal for beating one's personal best.
Help us raise awareness for bone marrow failure disease!
Make a difference, help a patient. Don't delay!
You can register online through Thursday 4/25/19 for both the 5K and walk, or on site on Saturday 4/27/19. Our goal is to have 500 people running and walking for bone marrow failure diseases.
Join us - register yourself, build a team, become a virtual walker or make a contribution to support our efforts.
DETAILS
When
Saturday, April 27, 2019 | 6:30am to 12:00pm
Where
Shoreline Village Long Beach | 429 Shoreline Village Drive in front of Wheel Fun Rentals
See the FAQs (link below) under PARKING for more information
What
Funds raised by the March for Marrow 5K Run and Walk will be used to search for a cure for bone marrow failure disease and support the patients who are living with it.
...What Else
Silent Auction: A key part of our Saturday’s festivities has always been our Silent Auction. We will offer many fun, interesting, and exceptional items for bidding.
"This run is perfect for new and seasoned runners. It is scenic, flat, and fast. When I can, I run it in memory of my brother, Garrett."
Mia Hamm, US Women's National Soccer Team, 1987-2004
What to Expect
Festivities include a 5K run and 1- or 2-mile walk, patient and family memory board, Moment of Remembrance, silent auction, light refreshments, inspirational speakers, and a day of fun connecting with fellow patients and families affected by a bone marrow failure disease, raising funds to support AAMDSIF's patient programs and services. Our honorary chair Connie Britton will be there to help us celebrate 10 years of raising awareness and we hope you will too!
Hotel
Details coming soon.
Timeline
6:30AM 5K Run Registration
7:30AM Celebrity Introduction
8:00AM Welcome/5K Start & Auction Opens
8:15AM Walk Registration
8:50AM 5K Awards/Photos/Breakfast
9:00AM Team Cheers and Team Photos
9:30AM Group Photo/Moment of Remembrance
10:00AM Walk Start
11:15AM Auction Closes
12:00PM Farewell
Leaderboard
ABOUT
The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the world's leading nonprofit health organization for patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
The Foundation’s strength stems from the multi-faceted community it developed over 30+ years. AAMDSIF serves and educates the patient population and health professionals and provides financial support to clinical researchers searching for better treatments and cures.
For 13 consecutive years, AAMDSIF has earned a coveted 4-star rating from Charity Navigator, the highest rating awarded by America’s largest independent charity evaluator. Only 1 percent of all American charities achieve this recognition for sound fiscal management and commitment to accountability and transparency.
COMMITTEES
This event would not be successful without the volunteers who serve on these committees.
Event Committee:
Connie Britton, Honorary Chair
Stephanie Hamm, Sponsorships & Business Engagement
Heidi Etchegoyen, Sponsorships & Business Engagement
Ruth Cuadra, Silent Auction & In-kind Outreach
Susan Kass, Silent Auction & In-kind Outreach
Gus Quinonez, 5K Marketing & Social Media
Shahana Larson, 5K Marketing & Social Media
Richard Stokes, Community Outreach & Collateral
Camilla Ricci, Community Relations
Kathy Madden & Margaret Dascalu, Volunteer Coordination
Bill Hamm, Web Page & Fundraising Support
VOLUNTEER
The success of this event depends on our volunteers!
Please consider volunteering at the March for Marrow LA 5K Run and Walk. There is a volunteer role for everyone and we would love for you to get involved! Email Kathy to sign up!
PLUS - The more volunteers we have the better our chances of receiving tickets to Disney from the Points of Light Foundation! Let them know you're volunteering here.
2019 WALK CHAMPION: Camilla Ricci, Aplastic Anemia and PNH Patient
Camilla’s life was completely changed in 2001 when aplastic anemia and PNH became her challenge. For over 15 years, she felt completely depleted of energy and was dependent on frequent blood transfusions to stay alive.
Camilla traveled to AAMDSIF conferences looking for answers for ten years and was alone every time. She had very little support and the burden was heavy. It was always a great comfort to see committee member, Ruth Cuadra, at the conferences; Ruth always shared her encouragement and strength.
Today Camilla is in a clinical trial called APL-2 and this new treatment has given her her life back. Camilla says she is very grateful for the research and development of these new medications that are bringing hope to many patients with rare diseases like her. As 2019 Champion she says, “Thank you for coming out to support this amazing cause.”
In the photo to the right, Camilla walks in the 2017 March for Marrow with best friends and monthly blood donors, Liz Bernardo and Richard Stokes. Camilla is eternally grateful to both Liz and Rick for literally keeping her alive and getting her to all of her treatments and transfusions. Besides being a loving caregiver to Camilla, Rick is one of March for Marrow's most enthusiastic supporters and is the creator of the Poker Walk.
This photo is from the first ever walk in Los Angeles, Hope, Steps & A Cure Los Angeles 2010. It was held in collaboration with the Mia Hamm and Nomar Garciaparra Celebrity Soccer Challenge on Saturday, January 18, 2010 at Cal State Dominguez Hills and the Home Depot Center (now the StubHub Center).
To Camilla’s right is Ruth Cuadra and to her left is her friend, Liz Bernardo.
SPONSORS
Our thanks to these supporters who help make this walk and run possible and ultimately make a difference in patients' lives.
National Sponsors
Platinum
Gold
Silver
Bronze
Community
Friends
Aplastic Anemia and MDS International Foundation
(800) 747-2820 | (301) 279-7202 | 4330 East West Highway, Suite 230 | Bethesda, MD 20814 | events@aamds.org
Share.
Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect.
REGISTRATION
Please select the appropriate registration below. Then create an account or login with Facebook and complete the short registration form. Be sure to select the correct t-shirt size for yourself.
All registrants must have a valid email address.
- To register a student between the ages of 12 and 21 use the discount code STUDENT to register at the reduced rate.
- To register a child under the age of 12 use the discount code CHILD to register them at the reduced rate.
You will have the opportunity to join a team during the registration process by selecting a team from the drop-down menu; alternatively, you can create your own team.
After you've completed and paid for your registration, you will receive an email receipt. Please check your spam filter if you do not receive the email within five minutes.
Aplastic Anemia and MDS International Foundation
(800) 747-2820 | (301) 279-7202 | 4330 East West Highway, Suite 230 | Bethesda, MD 20814 | events@aamds.org
Share.
Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect.
CHECKOUT
Aplastic Anemia and MDS International Foundation
(800) 747-2820 | (301) 279-7202 | 4330 East West Highway, Suite 230 | Bethesda, MD 20814 | events@aamds.org
Share.
Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect.
THANK YOU!
Aplastic Anemia and MDS International Foundation
(800) 747-2820 | (301) 279-7202 | 4330 East West Highway, Suite 230 | Bethesda, MD 20814 | events@aamds.org
Share.
Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect.