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CONFERENCE AGENDA
8:00 AM Registration and Breakfast
9:00 AM Conference Welcome - H. Joachim Deeg, MD
9:05 AM What is My Diagnosis? - Bart L. Scott, MD
9:30 AM Inherited Disorders - Sioban Keel, MD
10:05 AM Aplastic Anemia - Amy De Zern, MD, MHS
10:35 AM PNH - Bart L. Scott, MD
11:10 AM Break
11:25 AM MDS Non-Transplant Therapies - Rami Komrokji, MD
11:55 AM MPN Non-Transplant Therapies - Ruben Mesa, MD
12:30 PM A Nurse’s Perspective - Costandina Herbert, RN
1:00 PM Lunch Break
2:00 PM Leukemic Transformation - Anna Halpern, MD
2:35 PM MDS/MPN Transplant Therapies - H. Joachim Deeg, MD
3:05 PM Living Well with Disease - Krisstina Gowin, DO
3:40 PM AAMDSIF Advocacy - Leigh Clark, BCPA
4:00 PM Q&A and Conclusion
CONFERENCE LOCATION
Fred Hutchinson Cancer Research Center
Weintraub Building
1100 Fairview Ave N
Seattle, WA 98109
WHO SHOULD ATTEND?
The Conference is open to the general public, however sessions have been designed for patients, family members and caregivers who are affected by bone marrow failure disease including aplastic anemia, PNH, Myelodysplastic Syndromes (MDS), myeloproliferative neoplasms (MPNs) and other bone marrow failure diseases.
HOW TO ATTEND?
The Conference will be presented in a hybrid format - in person and virtual. The virtual platform is Zoom. You do not need a Zoom account, however it does make it easier to access the platform. Accounts are free and can be used on smartphones, tablets, laptops and desktops. This Conference will also have telephone access for participants who prefer to join in that way.
CONFERENCE FACULTY
H. Joachim Deeg, MD
Fred Hutchinson Cancer Research Center
Seattle Cancer Care Alliance
Faculty Director
Bart L. Scott, MD
Fred Hutchinson Cancer Research Center
Seattle Cancer Care Alliance
Sioban B. Keel, MD
UW Medicine
Amy DeZern, MD, MHS
John Hopkins Sidney Kimmel Comprehensive Cancer Center
Rami Komrokji, MD
Moffit Cancer Center
Constandina Herbert, RN
Fred Hutchinson Cancer Research Center
Seattle Cancer Care Alliance
Ruben Mesa, MD
UT Health - San Antonio
Anna Halpern, MD
Seattle Cancer Care Alliance
Krisstina Gowen, DO
University of Arizona Cancer Center
AAMDSIF would like to thank the patients, families, caregivers,
friends, foundations, and corporations whose generous
contributions help fund our educational programs.
Aplastic Anemia and MDS International Foundation
4330 East West Highway | Suite 230 | Bethesda, MD 20814
Have Questions? Contact us at conference@aamds.org or 800-747-2820 and press 2 for Patient Services.
9th Seattle (Hybrid) Patient Conference
REGISTRATION TICKETS