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AAMDSIF Bone Marrow Failure Disease
Patient & Family Conference
Saturday, April 25, 2020 (9am - 4pm EDT)
SPRING VIRTUAL CONFERENCE - NOW ONLINE
WHEN:
Saturday, April 25, 2020
9am - 4pm EDT
(1pm - 8pm GMT)
WHERE:
Online! Due to the coronavirus (COVID-19) pandemic, AAMDSIF has made the decision to move our conferences online in order to protect the health of our patients, families, caregivers and faculty.
WHO SHOULD ATTEND THE CONFERENCE:
Patients, families, caregivers and friends who are living with bone marrow failure disease are encouraged to attend this Spring Virtual Conference. The Conference includes sessions on aplastic anemia, Myelodysplastic Syndroms (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), Acute Myeloid Leukemia (AML) as well as those who have had or are considering a Bone Marrow Transplant.
PARTNERS:
We would like to acknowledge the support of our many generous patients, families and caregivers as well as our corporate partners including Celgene, Alexion, Novartis, Genentech, Jazz Pharmaceuticals, Apellis and Acceleron.
HOW TO PARTICIPATE:
Your registration confirmation email will include a link to a program called Zoom. You can watch the Conference from your computer, tablet or smartphone. You are also welcome to call in and listen to sessions that are of interest. Registration is required. Participants will be able to ask questions during each session.
Sessions will be recorded and available for later viewing on our website.
AGENDA:
9am Welcome
9:05am - 9:50am COVID-19 Update
Veronica Dioverti Prono, MD
Johns Hopkins School of Medicine , Baltimore
9:50am - 10am BREAK
10am - 10:50am Diagnosing and Treating Aplastic Anemia - Best Practices and What's New?
Shyamala Navada, MD, MSCR
Mount Sinai Hospital, New York
10:50am - 11am BREAK
11am - 11:50am Diagnosing and Treating PNH - Best Practices and What's New?
Jamile Shammo, MD, FASCP, FACP
Rush University, Chicago
11:50am - 12pm BREAK
12pm - 12:50pm Lunch and Learn: Bone Marrow Failure Patients and Nutrition
Twyla Jackson, RDN, LDN, CNSC
Northside Cancer Center, Atlanta
12:50pm—1pm BREAK
1pm - 1:50pm What's in an MDS Diagnosis? Breaking Down the Complexities, from IPSS-R to Risk Levels
Rami Komrokji, MD
Moffitt Cancer Center, Florida
1:50pm - 2pm BREAK
2:00pm - 2:50pm When MDS Becomes AML: What Every High Risk MDS Patient Should Know
Daniel Pollyea, MD, MS
University of Colorado Health
2:50pm - 3pm BREAK
3pm - 3:50pm Is a Bone Marrow Transplant the Right Option? Let's Talk Risks vs Benefits
Hemant Murthy, MD
Mayo Clinic Jacksonville, Florida
3:50pm—4pm Closing
AAMDSIF Bone Marrow Failure Disease
Patient & Family Conference
Saturday, April 25, 2020 (9am - 4pm EDT)
SPRING VIRTUAL CONFERENCE - NOW ONLINE
AAMDSIF Bone Marrow Failure Disease
Patient & Family Conference
Saturday, April 25, 2020 (9am - 4pm EDT)
SPRING VIRTUAL CONFERENCE - NOW ONLINE
Thank you for registering for our Spring Virtual Conference (previously scheduled for Atlanta) on Saturday, April 25, 2020!
We look forward to seeing you online. Shortly after registering, you will receive a confirmation email from the Foundation
with instructions on how to join the Virtual Spring Conference including a link and a password. There will also be instructions on how to participate via telephone.
A few days before the conference, we will send out reminder emails with the same information.
If you do not receive an email from us by Thursday, April 23, 2020,
please send an email to clark@aamds.org or call (800) 747-2820 x2.
If you do not receive your registration confirmation in your inbox, please check your Spam/Junk folders.